"she's not really ill. M.E doesn't exist, she's just lazy, wanting all the money she can get out of the government".
Saturday, 19 February 2011
It's all in your head...
I am swimming through treacle, my sinuses a mess  and the dwarves that have taken up residence in my head will not stop  mining. Shiver then sweat then shiver then sweat. I can't focus on words  they swim in and out like a school of fish in perfect 50,000 part  motion harmony, yet the motion sickens me, my eyes run constantly the  skin around them cracked and stinging from the excema that my own tears  always raise. My body reacts to the slightest bump with rainbow bruises,  I am marked as loved by dog, and my lack of awareness of self-in-space  means I bounce off doorways, walk into tables, put my feet into empty  air that I thought was floor and stumble. Solid ground like sponge under  my halting step. I am old at 40 years, quavering, infirm. The weight  falls away from me, a dress size gone in two weeks. It could just as  easily be pilling on, but that's because "I eat too much" and I lose  weight because I'm "not eating properly". I know that this is *just the  ME my dear, no point in giving you antibiotics, unless you get a  secondary.* The mucus flooding the back of my throat from my infected  sinuses tracks the infection on, marching like green goblins set to  invade. Temperature spikes again and I am left sweating and shivering  and helpless washed up on the white shore, tangled in bedding that is  sodden with sweat, unable to reach out for the water bottle and tablets  that bring relief for four hours out of six, wracked with spasm and  cramp muscles a-twitch like St Vitus' victims. 
"she's not really ill. M.E doesn't exist, she's just lazy, wanting all the money she can get out of the government".
 
"she's not really ill. M.E doesn't exist, she's just lazy, wanting all the money she can get out of the government".
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I'm 25 and have had M.E for pretty much my whole life. But it's gone under the radar for 24 of those 25 years. I've been told I suffer from all kinds of things such as IBS and even at one point my doctor was convinced (when I was 21) I was going through the menopause.
ReplyDeleteIt is just too easy for others to disregard it and make assumptions because they don't have to live day by day with it.